Today was a little harder than I expected. I have been trying to mentally prepare myself for this for a few weeks, but I guess this is something that doesn't get easier with time. It seems to be quite the opposite.
I think what I am struggling with is
knowing what will happen tomorrow and I can't take that hurt away from
my daughter. Emma Kate comes to me to comfort her when she has a bad
dream at night.
She comes to me to hold her when she is tired and wants to snuggle on
the couch. She comes to me to carry her when she is too tired to walk
up the stairs. And now, at the time when she is the weakest, I have to
give her to someone else and trust them with her life. I feel
Let me be clear. I have full
confidence that Emma Kate will get through this surgery and thrive as
she has after her first two surgeries. I believe that God has a
distinct and perfect purpose for Emma Kate's life and has His hand
wrapped firmly around her heart. I believe that these miracle workers
at Egleston are prepared and able to and will indeed do an amazing job
tomorrow morning. But I also know that Emma Kate will go through 5
hours of open heart surgery. She will spend a few days in the intensive
care unit with wires and tubes that will, at best be uncomfortable for
her and, at worst, will cause her pain. She will have her blood drawn
numerous times and be woken up throughout the day and night by beeps and
nurses and mommy and daddy checking on her. That is why today has been
hard. I know what is ahead and can't protect her from it.
that said, Emma Kate did great today. She got a little bored waiting
around as different Dr.'s and nurses came by to explain the next few
days and have us fill out paperwork. She also didn't care too much for
the lab work but bounced back quickly when all was done. She asked
Bethany if she could now walk up the stairs without getting tired. I am
so ready for that to be the case. This evening, she was overtired and a
little anxious. She doesn't fully grasp what all is going on but knows
something is going to happen tomorrow. She was a little restless but
finally snuggled with me and Bethany and is now passed out. I pray she
has sweet, restful dreams.
She will be the first case
tomorrow, meaning we will be at the hospital at 6am. She will get
versed (princess juice as EK calls it) soon after we arrive to help make
her sleepy. They will take her back around 730 and hope to begin the
procedure around 8. If all goes well, she should be back in the ICU
around 1pm and we will be able to see her around 2.
have received numerous calls, texts, emails and facebook messages of
encouragement and prayers and we are tremendously thankful for each
one. I feel selfish always asking for the prayers of others, some who
have never met us, but still I plead for them. I believe that Emma Kate
is a result of the power of prayer and will always hold firm in that
belief. So if you would, please pray tomorrow morning for our Emma
Kate. Ask that God walk with our new surgeon, Dr. Alsoufi, and allow
his hand to do the work he was trained for. Ask that His presence fill
the operating room so that peace and wisdom would abound. I would also
humbly ask that you pray for a peace that passes all understanding to
cover me and Bethany as we sit and wait and wonder and pray. Finally,
pray fervently that Emma Kate will have the strength to endure this
third surgery and that His comfort and healing would consume her these
next few weeks.
We will update as we can tomorrow. Thank you many many times over for lifting up our sweet girl. She is our heart and our joy.